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The Ketogenic Diet is a carefully calculated diet,
high in fat, low in protein, and virtually carbohydrate-free which is used
for the treatment of difficult-to-control seizures in children. This diet
was first formulated in the early 1920's and has proven to be very effective.
However, many centers stopped using the diet to control seizures as new
medications were developed. We have continued to use the ketogenic diet
at Johns Hopkins and have refined the methodology to produce a text and
a computer disc which enables families to calculate the diet more easily.
The diet is a medical therapy and should be used only under the careful
supervision of a physician and/or dietician. The diet carefully controls
caloric input and requires that the child eat only what has been included
in the calculations to provide 90% of the day's calories as fats. The diet
is currently offered only to children and adolescents although protocols
are being planned for adults.
Families interested in learning more about the Ketogenic diet may contact
the Charlie Foundation for Pediatric Epilepsy (1-800-367-5386) to obtain
a copy of a free videotape about the diet. A book entitled "The Epilepsy
Diet Treatment: An Introduction to the Ketogenic Diet" may be purchased
from Demos Publications, 386 Park Avenue South, Suite 210, New York, NY
10076 (1-800-532-8663). If after reviewing this information, a family wishes
to have their child considered for the Ketogenic diet, we suggest requesting
the child's physician to write us a letter summarizing the case. We will
then decide if more information would be appropriate and will contact the
family. Correspondence should be sent to:
The Pediatric Epilepsy Center
Meyer 2-147
The Johns Hopkins Hospital
600 N. Wolfe Street
Baltimore, MD 21287-7247
Families who are using or are about to initiate the diet through other centers
may wish to purchase The Ketogenic Diet Computer disc that is designed to
assist dieticians planning new ketogenic diets and to help parents who wish
to make a change their child's meal plans. This is a Windows based program
requiring at least an IBM compatible 386 machine. The cost for the disc
for dieticians is $150 and $75 for parents. To order, send the cost of the
disc plus a $5 handling fee to: The Ketogenic Diet Program, c/o Epilepsy
Association of Maryland, 300 East Joppa Road, Suite 1103, Towson, Maryland
21286-3018 (410-828-7700). |