Hopkins Sturge-Weber Syndrome Center

There are several ways that patients, families and friends can support the Center's mission:

1. Donate
A clinical research and treatment Center such as ours depends on the generosity of individuals, corporations, government and charitable institutions to fund our operating expenses. If you would like to organize a fund-raiser for the Center, make a donation or in some other way direct funds to the Center, please contact us.

2. Write
Sometimes a well-written letter can be invaluable. When we apply for grants, it is helpful to provide feedback from enthusiastic patients and families. If you had a great experience with the Center, please consider writing an open letter in support of the Center. Contact us for more information about how you can help.

3. Participate
Clinical research cannot progress without the participation of eligible patients. If you or someone you know has Sturge-Weber syndrome and would like to join one of our clinical research studies, please contact us.

For more information about writing or participating:
Laura Hatfield
Research Assistant
Johns Hopkins and Kennedy Krieger Institute Sturge-Weber Syndrome Center
(443) 287-6294
lhatfie1@jhmi.edu

For more information about donating:
Katie Coyle, CFRE
Director of Development
Neurology and Psychiatry
Johns Hopkins Medicine
(410) 516-6250
kcoyle@jhmi.edu

For more information about any of these:
Anne Comi, M.D.
Director
The Johns Hopkins and Kennedy Krieger Institute Sturge Weber Syndrome Center
(410) 614-5807
acomi@jhmi.edu